Child friendly privacy notice
Why do we need your information?
We need to keep some information about you to make sure we can give you the best care possible.
What information do we keep about you?
- Your name, address and date of birth.
- When you have been to the hospital or doctors for care or treatment.
- Names of your family or doctors and nurses who look after you.
What are our responsibilities?
- To make sure the information we have about you is correct.
- To keep your information safe.
- To make sure you can read and understand the information.
- To show you the information we have about you, if you ask to see it.
We will not share any information about you, unless:
- You ask us to.
- We ask you if we can and you say “yes”.
- Someone is in danger, for example to stop someone from becoming ill or being badly hurt.
What do we do with your information?
We may use your information to:
- Help you or your doctors to make decisions about your health.
- Make sure your care is safe.
- Work well with others to give you the right treatment.
We may also need to use your information to:
- Protect the health of others.
- Make sure we are giving everyone the best care.
- Carry out surveys about how well we are looking after you.
- Help look into any concerns or complaints.
Who might we share your information with?
Other organisations involved in your care and safety, for example:
- Other hospitals
- Your GP
- Ambulance services
- Social services
- Hospital inspectors, known as the Care Quality Commission (or CCG)
- Commissioners, who pay the hospital to provide a service
- Education Services
- The Police
Where we can, we will try to ask you if it is okay to do this but there may be times when we need to share this information without asking you first. This may be because we are not able to ask you or because it needs to be done quickly to help you.
What are your rights?
You can tell us when you do not want your information shared. This could be with your parents, carers or others.
If you tell us not to share your information, we will make sure we don’t wherever we can.
We will only share your information if the law tells us we have to.
You can ask for a copy of your information on paper or electronically (email). You should ask for your information in writing (email or letter) and include your full name, address, birthday and the number known as the NHS number.
What can you ask us for?
As well as asking for copies of your information, you can also ask:
- Certain people to stop using your information at certain times, this may affect your healthcare or delay treatment.
- To stop us using your information for research. If you choose to opt out, ask the hospital’s Data Protection Officer to help you.
- To make sure that the information we hold about you is correct.
- How long your information will be kept before it is destroyed.
- Details about how we use your information
If you want to find out more about your information, how we use it and your rights, please contact the Data Protection Officer Matt Barker by telephone: 01268 524900 or email email@example.com
Fair Processing and Privacy Notice
Mid and South Essex NHS Foundation Trust takes your confidentiality and privacy rights very seriously. This notice explains how we collect, process, transfer and store your personal information and forms part of our accountability and transparency to you under the General Data Protection Regulation (GDPR) 2018.
MSEFT Privacy Notices
Please see below a list of our privacy notices you can download.
How will we meet the Principles of the GDPR?
We will process your personal information fairly and lawfully by;
a) Only using it if we have a lawful reason and when we do, we make sure you know how we intend to use it and tell you about your rights;
We do not rely on consent to use your information as a ‘legal basis for processing’. We rely on specific provisions under Article 6 and 9 of the General Data Protection Regulation, such as:
‘…a task carried out in the public interest or in the exercise of official authority vested in the controller.’, and
‘…medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems…’
This means we can use your personal information to provide you with your care without seeking your consent. However, you do have the right to say ‘NO’ to our use of your information but this could have an impact on our ability to provide you with care.
b) Only collecting and using your information to provide you with your care and treatment and will not use it for anything else that is not considered by law to be for this purpose;
c) Only using enough of your personal information that will be relevant and necessary for us to carry out various tasks within the delivery of your care;
d) Keeping your information accurate and up to date when using it and if it is found to be wrong, we will make it right, where appropriate, as soon as we can;
e) Only keeping your information in a way that it will identify you for as long as we are legally required to, whilst ensuring your rights;
f) Having secure processes in place to keep your personal information safe when it is being used, shared, and when it is being stored.
What information do we collect from you?
Health and social care professionals working with you - such as doctors, nurses, support workers, psychologists, occupational therapists, social workers and other staff involved in your care - keep records about your health and any care and treatment you receive. This may include:
Basic details such as name, address, date of birth, phone number, mobile number, email address - where you have provided it to enable us to communicate with you by email.
- Your next of kin and contact details;
- Notes and reports about your physical or mental health and any treatment, care or support you need and receive;
- Results of your tests and diagnosis;
- Relevant information from other professionals, relatives or those who care for you or know you well;
- Any contacts you have with us such as home visits or outpatient appointments;
- Information on medicines, side effects and allergies;
- Patient experience feedback and treatment outcome information you provide.
Why do we collect this information about you?
Your information is used to guide and record the care you receive and is vital in helping us to;
- have all the information necessary for assessing your needs and for making decisions with you about your care;
- have details of our contact with you, such as referrals and appointments and can see the services you have received.
- can assess the quality of care we give you;
- can properly investigate if you and your family have a concern or a complaint about your healthcare;
- The Trust operates a text appointment reminder service and you have the option to opt out either by speaking to a member of staff, or opting out when you receive an appointment reminder text;
- To provide feedback on your experience to the Trust, you will be contacted by an NHS approved company commissioned by the Trust. If you are an outpatient they will contact you by text or interactive voicemail. If you are an inpatient the ward staff will give you a questionnaire which will be either in paper format or electronic using one of the Trust’s tablets. You can opt out from this process either for a particular hospital attendance or permanently by informing a member of Trust staff who will advise the Information Department to remove your consent.
Professionals involved in your care will also have accurate and up-to-date information and this accurate information about you is also available if you:
- Move to another area;
- Need to use another service;
- See a different healthcare professional.
Who might we share your information with?
Health and Social Care Professionals - Your information will be shared with the team who are caring for you and are providing treatment to you.
However, the NHS and other agencies, including social services and private healthcare organisations work together so we may need to share information about you, with other professionals and services involved in your care. We do this in order to provide the most appropriate treatment and support for you, and your carers, or when the welfare of other people is involved. We will only share your information in this way if we have your consent and it is considered necessary.
You have the right to refuse/withdraw your consent to information sharing at any time. Please discuss this with your relevant health care professional as this could have implications in how you receive further care, including delays in you receiving care.
We may also have to share your information, subject to strict agreements on how it will be used, with the following organisations;
- NHS Trusts / Foundation Trusts
- Independent Contractors such as dentists, opticians, pharmacists
- Private Sector Providers
- Voluntary Sector Providers
- Ambulance Trusts
- Clinical Commissioning Groups
- Social Care Services
- NHS England (NHSE) and NHS Digital (NHSD)
- Local Authorities
- Education Services Fire and Rescue Services
- Police and Judicial Services
- Voluntary Sector Providers
- Private Sector Providers
- Other ‘data processors’ which you will be informed of
However, a person’s right to confidentiality is not absolute and there may be other circumstances when we must share information from your patient record with other agencies. In these rare circumstances we are not required to have your consent. Examples of this are:
- If there is a concern that you are putting yourself at risk of serious harm;
- If there is concern that you are putting another person at risk of serious harm;
- If there is concern that you are putting a child at risk of harm
- If we have been instructed to do so by a Court;
- If the information is essential for the investigation of a serious crime;
- If you are subject to the Mental Health Act (1983), there are circumstances in which your ‘nearest relative’ must receive information even if you object;
- If your information falls within a category that needs to be notified for public health or other legal reasons, such as certain infectious diseases.
The information from your patient record will only be used for purposes that benefit your care - we would never share it for marketing or insurance purposes.
NHS Patient Survey Programme (NPSP) is part of the government’s commitment to ensure patient feedback is used to inform the improvement and development of NHS services. We may share your contact information with an NHS approved contractor to be used for the purpose of the NPSP.
We carry out regular patient surveys to support care improvement which are facilitated by the Trust and there are times where we may share your contact information with an NHS approved contractor for this purpose.
NHS Digital, on behalf of NHS England assess the effectiveness of the care provided by publicly-funded services - we have to share information from your patient record such as referrals, assessments, diagnoses, activities (e.g. taking a blood pressure test) and in some cases, your answers to questionnaires on a regular basis to meet our NHS contract obligations.
You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do choose to opt-out your confidential patient information will still be used to support your individual care.
My Care Record
Mid and South Essex Foundation NHS Trust is part of My Care Record, an approach to improving care by joining up health and care information. Health and care professionals from other services will be able to view information from the records we hold about you when it is needed for your care. Please see www.mycarerecord.org.uk for more information.
To find out more or to register your choice to opt out, please visit www.nhs.uk/your-nhs-data-matters .
Improving Health, Care and Services through Planning
To help us monitor our performance, evaluate and develop the services we provide, it is necessary to review and share minimal information, for example with the NHS Clinical Commissioning Groups. The information we share would be anonymous so you cannot be identified and all access to and use of this information is strictly controlled.
We carry out a programme of clinical audits. Access to your patient records for this purpose is monitored and only anonymous information is used in any reports that are shared internally within our Trust and with external audit centres.
Improving Health, Care and Services through Research
The Trust actively promotes research with a view to improving future care. Researchers can improve how physical and mental health can be treated and prevented.
If we use your patient information for research, we remove your name and all other personal data which would identify you. If we need the information in a form that would personally identify you, we would ask for your permission first.
Telephone and video consultations
We may offer you a consultation via telephone or video conferencing. By accepting the invitation and entering the consultation you are consenting to this. Your personal/confidential patient information will be safeguarded in the same way it would with any other consultation, and any risks explained to you before the consultation begins. The Trust follows the guidance provided by NHS: https://www.nhsx.nhs.uk/information-governance/guidance/using-video-conferencing-and-consultation-tools/
Use of artificial intelligence (AI) assisted medical diagnosis
We may use AI technology to support our Clinician's to identify potential health issues found during your treatment/consultation. The AI technology is used to review the images/data to identify potential findings and assist the clinician in decision making and in no way will replace the final verdict of the clinician’s diagnosis. We will also abide by the code of practice in relation to the use of digital and data driven health technologies, please refer to A guide to good practice for digital and data-driven health technologies - GOV.UK (www.gov.uk).
If you have received medical imaging such as an MRI, then you have the right to express your point of view and discuss the decisions made with your clinician.
How we keep your information safe?
We are committed to keeping your information secure and have operational policies and procedures in place to protect your information whether it is in a hardcopy or electronic format.
This Trust is registered to the Information Commissioner’s Office; registration number Z1972899.
All of the Information Systems used by our Trust are implemented with robust information security safeguards to protect the confidentiality, integrity and availability of your personal information. The security controls adopted by the Trust are influenced by a number of sources including the 10 National Data Guardian Standards and guidelines produced by NHS Digital and other Government standards.
All employees and our partner organisations are legally bound to respect your confidentiality, all staff must comply with our security operating procedures. Any breach of these is treated seriously, and could result in disciplinary action, including dismissal.
If any of your personal information is to be processed overseas (i.e. outside the EU) a full risk assessment would be undertaken to ensure the security of the information.
Where do we store your information Electronically?
All the personal data we process is processed by our staff in the UK however for the purposes of IT hosting and maintenance this information may be located on servers within the European Union.
No 3rd parties have access to your personal data unless the law allows them to do so and appropriate safeguards have been put in place. We have a Data Protection regime in place to oversee the effective and secure processing of your personal and or special category (sensitive, confidential) data.
How long do we keep your information?
All records held by the NHS are subject to the Records Management Code of Practice for Health and Social Care Act 2016 (the Code). The Code sets out best practice guidance on how long we should keep your patient information before we are able to review and securely dispose of it.
How can I access the information you hold about me?
You have a right to see the information we hold about you, both on paper or electronic, except for information that:
- Has been provided about you by someone else if they haven’t given permission for you to see it
- Relates to criminal offences
- Is being used to detect or prevent crime
- Could cause physical or mental harm to you or someone else
Your request must be made in writing and we will request proof of identity before we can disclose personal information.
All applications for access to health records must be made in writing or email, and given to the service where you receive your care or alternatively sent to:
Access to Records Bureau
Complaints and Patient Experience Team
The team are available to assist you with your comments, concerns and complaints. The team act independently of clinical teams to ensure your concerns are investigated and responded to in an effective and timely manner. Contact details are:
PALS and Complaints Department
To get further advice or to report a concern directly to the UK’s independent authority you can do this by making contacting with:
Information Commissioner’s Office
0303 123 1113
Other Useful Contact Numbers
The Data Controller
Mid and South Essex NHS Foundation Trust
Main Switchboard - 01245 362000
Freedom of Information
Mid Essex Hospitals NHS Trust
Data Protection Officer
Mid and South Essex NHS Foundation Trust